The International Prader-Willi Syndrome Organisation

IPWSO is the international umbrella body for Prader-Willi syndrome (PWS) associations around the world. PWS is a complex genetic disorder characterised by low muscle tone and failure to thrive at birth, and later evidence of short stature, intellectual disabilities, behavioural and psychiatric challenges, and impaired satiety. The latter is associated with excessive food intake (hyperphagia) that results in severe obesity, if access to food is not carefully controlled. Life expectancy may differ between countries depending on the availability of early diagnosis, information treatments, services and supports.  

IPWSO is committed to supporting people with PWS and their families whatever their needs and wherever they live. Our vision is to create a world where people with PWS and their families receive the services and support they need to fulfil their potential and achieve their goals. 

Our mission is to unite the global community to collectively find solutions to the challenges of the syndrome and to support and advocate for people with PWS and their families, PWS associations and health and social care professionals.

IPWSO is registered with the Charity Commission for England and Wales.