Prader Willi syndrome Specialist Advisor - Home based living in Northern Ireland

PWSA UK is seeking a passionate individual to join us as a part-time PWS Specialist Advisor for Northern Ireland. As a small charity, we are dedicated to providing lifelong support to those affected by Prader-Willi Syndrome (PWS), a rare genetic condition that leads to an uncontrollable drive to eat, along with learning and physical disabilities.

We aim to make a meaningful impact in the lives of PWS families by offering a helpline, comprehensive information, peer support groups, community events, professional training, and support for vital research. Our goal is to help those in our community overcome challenges and live fulfilling lives.
We are looking for someone who has a deep understanding of the health, social care, and education systems in Northern Ireland and a strong belief in the potential of people with PWS. The ideal candidate will have excellent interpersonal and communication skills, be self-motivated, and capable of engaging with families, healthcare professionals, and policymakers.

This is a home-based role, perfect for someone living in Northern Ireland, with a commitment of two days a week on a fixed-term contract for two years. If you are interested in helping us make a difference, please send your CV and a covering letter to jlodge@pwsa.co.uk by 9 am on Monday, 23rd September. Interviews will be conducted via Zoom on Tuesday, 1st October. For more information or to discuss this opportunity, please contact Jackie Lodge at jlodge@pwsa.co.uk.