Huntington's Disease Association Northern Ireland
Huntington's Disease Association Northern Ireland
HDANI (correspondance only)
53, Andersonstown Road
Belfast
BT11 9AG
United Kingdom
Contact Details
Sorcha McGuinness
Opening Hours
We have a small but dedicated team of staff who work part-time or compressed hours from home Monday to Friday.
Our address is for post only.
Please note that we do not provide medical advice however we can link you in with health professionals.
Please email or call and we will get back to you as soon as we can to assist with signposting, emotional and practical support, volunteering, training or fundraising enquiries.
Sectors
Carers Advice services Children and familiesServices
TrainingAudience
Carers Mental health Physical disabilitiesHuntington’s Disease Association Northern Ireland provides support to individuals, families and carers living with Huntington's disease in Northern Ireland and also provides information, advice and signposting for health and social care professionals.
About HDANI
HDANI works throughout Northern Ireland providing support, information, advice and social connections to those living with the impact of Huntington’s Disease. We run regional support groups, provide telephone and face to face advice and support as well opportunities for families to connect through our events and befriending services.
We also work closely with medical professionals to advocate for the most effective care for our clients and lobby the Executive for improved and efficient services. We provide training and awareness raising events and keep our members informed of the latest research and medical advances in the quest for effective treatments and ultimately a cure.
The Association is dependent on a small but dedicated team of staff and volunteers who are committed to providing the best possible outcomes to our members.
Our Mission Statement
The Huntington’s Disease Association Northern Ireland’s mission is to secure the best quality of life for sufferers and their families and to work with others towards the effective management and eventual eradication of the disease.
Our Vision
The Huntington’s Disease Association Northern Ireland’s vision is for those affected by HD to be empowered and supported to live as normal a life as possible.
Our Events
Monthly Support Groups are located in Belfast, Armagh, Omagh and Limavady
Check out our events on Facebook https://www.facebook.com/Huntingtons-Disease-Association-Northern-Ireland-364489753708919/
Huntington's Disease Association Northern Ireland's Services
Huntington's Disease Association Northern Ireland's Content
More Information
Type of Organisation
VCSETeam
- Sorcha McPhillips
- Errol Walsh