The Cavan Tommy Hoey Trust
United Kingdom
The Cavan Tommy Hoey Trust (IRELAND) is set up to fund raise for our grandson and his family Cavan has rare diseases that are known as XLP,HLH,EBV,all of theses diseases are life threating XLP is past from the mother to the boys in the family and HLH can be past by either parent EBV is not life threating but if you take it with HLH and EBV it then becomes life threating Cavan has had a bone marrow transplant this is to help hem fight infections like any other child of his age but it is a long process and Cavan is very prone to infections at any time with XLP,HLH,EBV, Cavan has to be very careful and his life is still uncertain