Are you or someone you know living with a rare disease in Northern Ireland?

The Patient and Client Council is encouraging people across Northern Ireland to share their experiences of living with a rare disease to inform key decision makers and planners in Health and Social Care.

There are many people living across Northern Ireland with a rare disease or caring for someone with a rare disease.  It is important that these people are listened to so that services can be planned to meet their needs.

You can share your views by completing this short questionnaire: http://www.surveymonkey.com/s/raredisease

 

Last updated 12 years ago