Project Officer (part time, home based)

Our vision is that no one in NI is disadvantaged because of the rarity of their health condition.
This role will support those living and working with rare conditions in BHSCT, SEHSCT and SHCT areas.

The project officer will help achieve NIRDP's vision that no one in NI is disadvantaged because of the rarity of their health condition. The post is part-time & home based.

The officer will build up knowledge and support in their areas, linking with health & social care and other voluntary organisations. The project officer team will be first point of contact for people living and working with rare disease. The project will provide practical advice, signposting, peer support and volunteering opportunities. It will also work to improve networking, partnership engagement and seek to influence relevant policy.

The officer will work within defined processes and procedures and may have delegated responsibility for certain tasks. Will develop and deliver events, survey, audits and undertake reporting on behalf of NIRDP. No budgetary responsibility, will have assigned targets. No line management responsibility, may supervise volunteers.

Funded by the National Lottery through the Big Lottery Fund